Spinal Muscular Atrophy: Indians who want $2.1m drug to combat a uncommon illness

Affan, seven, and Erhan, 5, have Spinal Muscular Atrophy (SMA) – a uncommon genetic dysfunction that causes muscle deterioration and impacts respiratory. Physiotherapy appointments alone value the household 40,000 rupees ($480; £395) a month, and their sons want fixed care as they can’t sit, stand or stroll independently.